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Autism | Needed To Make An Appointment | Non Verbal Communication

(upbeat music) – And it’s Monday morning. I think everybody’s feeling
today is Monday morning. I’m tired. Brayle’s a little cranky. Stacey’s sick. Definitely a Monday. Brayle, are you ready for today? – [Woman] She’s not. – [David] Nope. – It’s supposed to be hot today though. – [David] Cool mornings
with school bus rides. – [Stacy] Brayle, look. – [David] They make everything better. – [Stacy and David] Say Cheese! – [David] And it’s a Monday morning. – You look like you’re
from the seventies, Brayle. Are you from the seventies? She bringing Minnie Mouse with her today? – [Stacy] Yep. She saw her on the stairs and she had to bring her with. – [David] All right. Time to go to school. And just like that we are back home. Brayle’s at school and I
need to make a phone call. Monday, Monday, Monday. (phone ringing) Hi, my name is David. I need to schedule an
appointment for my daughter. Brayle. B-R-A-Y-L-E. For a, some bloodwork for
uh testing her thyroid and then a metabolic panel. Um, do you think we can… Sorry. I’m just gotta check real quick. Do you think we can, um, take Brayle out early tomorrow? Or should we do it two days in advance? – [Stacy] Probably two days. – Could we do, um, Wednesday morning? Awesome. Thank you so much. Bye. 9 a.m. So, yes, we are doing
blood work for Brayle because, um, we did have,
we have some concerns. She is sweating a lot
when she falls asleep. Within like the first, uh,
the first hour or so of sleep, it’s like really heavy sweating and she soaks through her clothes. It doesn’t matter how
cool we make the room, how light her pajamas are. It’s no matter what because
her body like really overheats. And so we talked to our pediatrician and, um, we wanna run some tests, so Brayle does not do great
with needles at all. So Brayle really has a hard time with these types of events. And so – [Stacy] Events? – Events (laughing).
It’s an event for her. Um, the last time we had
a needle situation was… It was a long while ago, but it took at least two
or three visits for her to be comfortable again going back. So, it’s a pretty traumatic
experience every time. So we wanna make sure that
there’s a good reason for it and when we do do it that it’s worth it. And since we are going
through with testing her, we are testing her thyroid. Since we are going through with that we might as well just do it all at once instead of maybe they’re
like, “Oh it wasn’t that. “Let’s test for this and take more blood.” Instead, we just do it
at once so that we don’t have to do it multiple times with her. – [Stacy] Hopefully. – Hopefully. So, yeah, we don’t know
exactly what’s going on. They’re gonna run, uh, the
first thought was thyroid test because we do have family
history of thyroid issues. So, it could just be because she, that’s just the way she is. But we would rather be safe. We would rather wanna know
if there’s something wrong if there is something wrong. Better to know. Better to know. And it will be a peace of mind. We’re not WebMDing this, um, – [Stacy] The doctor suggested
it might be a thyroid issue. – Yeah. Doctor suggested it. We suggested the full
panel just because we know, like, if we have to do
the blood work anyway, why not just do it all at
once so that we have it done, and if something comes up, like a few weeks from now, you never know, that we have something to look back on. It’s always good to know health, too. I mean kids don’t need
blood work done annually like I would need it. So, yeah, it’s Monday. That’s a Monday. That’s what Monday’s doing. – [Stacy] You’ve said Monday
so many times already. – Everybody knows it’s Monday. (laughing) And on top of it being Monday, the bus was really sluggish today. It was, it was doing
it’s thing, the sputters. I think it just feels like it’s Monday. That has to be it. I don’t know. (laughing) – [Stacy] Could you imagine – I don’t wanna tear it open again. I gotta make sure it’s set for winter before winter comes. – [Stacy] Do all the winter
things you can for it. – Yeah. On for the rest of
Monday. Yay Monday. Woo. (Brayle laughing) – And we are about to head
off to swim on this Monday. And we forgot to mention
earlier in this blog that I lost my keys and wallet. Where are my keys and wallet? Um (Brayle laughing) – [Stacy] I just realized
what you’re talking about. – My keys and wallet? – [Stacy] She ripped the bag open. – [David] Swim time. I forgot to mention earlier that today is Brayle’s five year what do you call it? Diagnoseaversary? Diagversary? – [Stacy] Five years ago
today Brayle got diagnosed. – [David] With autism. – [Stacy] Brayle, can you say autism? Say autism. – (mumbles) – So, yeah, five years ago. Maybe I’ll talk about it a
little bit after I work today. – [Stacy] I wanna talk too. – I wanna go down memory lane. You wanna go down memory lane, too? – I want you to start the air conditioner. – (laughing) – [Stacy] It’s so hot. Today. – We went live today and talked about but I’m trying to figure out
how to turn on the car. Um, we’re gonna go swimming first and then I’ll talk about it. Brayle, say swim. – [Stacy] Swimming. (Braylee singing) Look. Say swimming. – (mumbles) – [Stacy] Yeah. – [David] We’re done
swimming already, huh? – Say “All done.” Say “All done.” – All done. – So, again, today is
Brayle’s fifth anniversary from diagnosis. Five years in. How would you say this
five years has been? – Oh… It’s been the most interesting five years. Lots of ups and downs. Rewarding. We’re lucky. We have the coolest kid ever. – [David] That’s the truth. I would say I’ve learned – She’s made our lives
better, that’s for sure. – In my entire lifetime, I’ve learned more in these last five years than I’ve learned any time else. And I feel like I’m a
better human being for it. – I agree. She’s probably changed both
of our lives tremendously for the better. More than just being parents would. – So, yeah, here’s to the next five years. – It’s crazy to think that… Sometimes it feels like we’re still new and we don’t always know
what we’re talking about or we don’t always know things and we are constantly learning. But it’s crazy to think that
we’re actually five years of experience. Like, we’re
no longer the new people. You know what I mean? Like, we’re no longer brand new to this. We have five years of
experience under our belt. We’re actually in a thrive
kind of season with her. – It’s been a good year.
– She’s flourishing. – Yeah. It’s been a really
good year for her and for us. Good job 2019. (making sounds) – [David] Brayle (making sounds) – [Stacy] Can you put these in the trash? Bray, trash. Trash. She looks so tired. – [David] Today they’re going
to take blood from you, okay? They’re gonna put a needle
in there. In your arm. Okay? It’s gonna hurt a little bit. But it’s just to make
sure that you’re healthy. Just to check your blood. We’re
just gonna check your blood. Okay? So we’re not going to school. – [Stacy] Right away. – [David] We’re also not
taking the yellow bus today. – [Stacy] At all? – [David] We’re taking red car. Red car to the doctor’s, then to school. Okay? I know you’re tough. You can do it. You can do it. – [David] Red car. – (mumbles) – Doctor. – (mumbles) – Then school. (mumbles) There’s a few things that
we’re gonna do, okay? This morning is the
morning that we’re gonna do the blood draw with Braylee. And, I mean, it’s never
fun to do this just because, I don’t know, we don’t fully know if she understands why we are doing it. I think she might know that we’re going in to the doctor’s office, but I don’t know if she understands what we’re gonna be doing. Like, I think the needles
are the worst part. We’ve always had tough times
with needles at doctors. So, I mean, we have to hold her down because she can’t be
moving around, obviously, with getting a blood draw. And the look that she gives us… It’s terrible. It is. So, it’s gonna be a hard morning. But, it’s important to do this, so we’ll get through it. We will. Brayle is a tough girl. She is. Brayle, you’ve got this. Shoe time! – You did absolutely amazing. – [Stacy] You’re such a champ! – [David] That went so fast. That was probably the
best experience we’ve had with the blood draw. That definitely was. Like – [Stacy] But we’ve never
had her in that position with that type of chair
with the arm thing. She likes the arm thing down. – [David] Yeah, she
doesn’t have to lay down. All the times I think
she’s had to lay down. So I think that helped.
She just sat in my lap. – [Stacy] Well, because
it feels way more forced when she’s laid down. – Yeah. – [Stacy] Like you have to
forcibly hold all of her limbs, whereas if she’s sitting, you just have to hold her body really. – Yeah, and she didn’t kick at all. – [Stacy] Nope. – She was kind of upset about it. – [Stacy] And she still is. – [David] She’s still upset about it, but not nearly as traumatic
as it has been in the past, so – [Stacy] Yeah, it’s a good day. – Expected the worst and
got pleasantly surprised. Brayle, you’re so awesome. You’re so awesome.
– You did great. So we’ll get the results another day. Had to run home real quick.
Gotta grab something. – It’s a medical wrap thing. – So I don’t know how we came across this, but anytime that Brayle is hurt or, like, she has a scratch
or she scrapes herself up, stubs her toe, like just hurts something, she wants to use this bandage. (Brayle screaming) It’s an ace bandage,
right? Is that what it is? – [David] I think it’s called
an ace bandage. It’s like a – It’s like the stretchy fabric kind. – That’s to stabilize ankles and stuff. The stretchy kind with the velcro ends. We just get the Target brand. For whatever reason, she likes, like say the cat clawed
her foot last week, right? I think he was trying to
move and he caught her foot with his nail and she started crying. And when we wrap her up with this bandage, she stops crying and
it makes her feel calm. Right, B? – [David] And now, she’s
starting to wrap it up. When something hurts, she’s
starting to wrap it up herself. – [Stacy] Yeah, which is huge, ’cause then we have some way of knowing, like where something hurts on her. – Like if she’s having a really bad day and we just don’t
understand what’s going on, maybe she has a really bad headache, maybe she wraps it around her head. – Haven’t seen that yet, but,
like that has a potential of eventually happening. – That’d be an example
where maybe she’s having, like stomach cramps or something. Maybe she’ll wrap it around her stomach. – But we have seen her
find it, um, sometimes, and she’ll wrap. It’s primarily been used for hands, feet, and legs for her. Hands, arms, feet, legs. But it helps. For whatever
reason, it helps her, um, feel better emotionally.
– It helps her mood. – The crying goes away. – Yeah. – Pretty quickly. – Like, it just, it calms her down. But if it works for her, why not? – Yeah, and we know that
taking off this bandaid, I mean, you know blood draws. – [Stacy] And we don’t want
her to pick at her arm either. – Taking off those bandaids,
it doesn’t feel good. It’s gotta be – [Stacy] And she picks. – a fast, swift motion.
– [Stacy] Did you hear me? – Yeah. – [Stacy] She picks it, and the skin, if the bandaid takes skin
off, it’ll be irritated and she will, like, pick
and prod at scratches and things that hurt. She’ll obsess over it. There was a time where she
would try to recreate something that caused her pain. – That was tough because, like, I think the first time we noticed it is when she like fell or something, like onto her knees or something, and scraped her knees a little bit. And she just kept falling
over and over after that. – [Stacy] Doing it on purpose, like as if she was outwardly trying to process what happened. – She went through that probably
for a few months I think. – [Stacy] Yeah. – Even longer. – [Stacy] It was a couple years ago. She was probably three or four. – Yeah, and anything
really that caused pain, she would recreate it. Which is really hard to watch. – [Stacy] Yeah. ‘Cause she would obsessively
do it over and over again. And if you interrupted,
she got very, very upset. – And that turns into
a meltdown real fast. – So glad we’re through that phase. – Oh yeah. – I think that bandage came
along during that same time. – I think so. – Maybe that’s actually what
helped get through that. I don’t know. But who knows, maybe some of this information
will help you guys out. – Or give you an idea. Who knows. – Has anybody ever experienced
anything like that before? – [Stacy and David] Ready? – Oh, it’s not actually that bad. Look at that! That was really easy! See? – [Stacy] See? You did it! – Good job. – Now look. Put this on. – [Stacy] We’re gonna wrap you. – We’re gonna put this on. (Brayle crying) (Stacy laughing) – Why are you putting it on that arm? It’s on this arm. – It’s interesting that she’s
putting it on the opposite arm of where the bandaid was. I think it might be because
she wants to touch it. – [Stacy] Are you excited? – Aw yeah! Welcome to PeeWee’s bus. – [Stacy] This is different. I’m actually recording you coming in. – [David] That is different. – [Stacy] Take your seat happy girl. – Um, so I tested out the bus
to go pick up Brayle today, and it’s really sputtery. Like it’s gotten to the
point where I’m kinda worried about driving all the way to pick her up. So we didn’t take it. We took the car. We didn’t take the bus
today to pick her up. – [Stacy] ‘Cause of the rain, we haven’t taken it a few days. – Yeah. – [Stacy] And swimming and stuff. – It just doesn’t feel right. And I’m gonna have to
take it back apart again. But it’s still running, and I think that she needs a
quick ride around the block. – [Stacy] Aww. Did you give Minnie a kiss? (bus sputtering) Are you happy to be on your bus? (singing) Good job. She hopped up so fast out of her seat. Are you happy? Hey. – So I think we might be
okay to drive in the morning. It’s not as sputtery as it
was earlier today, so maybe. – [Stacy] Say happy. (camera beeps) – And we like llamas too. – [Stacy] She’s been
really big on egg hats. Ooh. Egg hats. (Brayle singing) – [David] Llama down. Llama down. (upbeat music)

56 Replies to “Autism | Needed To Make An Appointment | Non Verbal Communication”

  • Hey guys, fathering autism lead me to you. I am in Minnesota as well and I’m loving your channel, braylee is the cutest love bug!!

  • Hope her bloodwork comes back okay! Everyone at my ABA center is sick right now, we had like 7 client cancelations today so I'm about to be in Stacy's boat soon 😷

  • When I was a kid I used to cry when I had to get bandage taken off. I found it easier to take the bandage off when I was in the bath. So if you have a real bloody bandage situation try to put Braylee in the tub and the bandage will come off much easier. And no pain. You both are doing a great job.

  • Not really related but it makes me happy that Bradley eats her mini muffins in a circle. Not sure if she always does it but she was after the blood draw in the car. Such a cutie, she’s not even my kid but I’m so proud of her for doing so well with that stupid needle. Great job, B! 🎉

  • I could probably watch a 2 hour video of Braylee putting "hats" on her toys doing her beatboxing lol She is too freakin cute! 💕

  • Hey guys! You guys are doing so awesome with miss B! I know you guys get told that often but its true! As for the needle fear I still fear them at 22.. I had to have some in my toe not long ago and needed 3 full size men to hold me down.. for average people they say it feels like a little pinch or they dont feel anything but for some of us it feels like an actual stab compaired to just a little pinch. It's ok B! You arent the only one who fears them sweetie 😘😘 it'll be ok for sure

  • With Braylee using the ace bandage, maybe she uses it for growth spurt pains. Maybe? Llama down! I know you didn't see me at the live yesterday, I heard something mentioned about a cd? I came in late. Oh, and I am glad Braylee did so well with the blood draw. I guess the different position helped, even though she was still upset. And I still got to hear her singing! I just love you guys <3

  • B is totally talking!! But I swear she is going to be a rapper with her singing. It's super cool. Congrats on your 5 years of growing into such awesome, caring parents after recieving her diagnosis.

  • She really mimicked That Toy story scene where Buzz lost his helmet. I recognize that the minute she started singing it and then I saw her playing with helmet. She is super smart

  • The bandage could be so so helpful for communication and soothing when pinpointing an ailment! As crazy as it may seem I remember very vividly the first time Stephanie was able to communicate to her mother and I that she had cramps! We celebrated the fact that she could tell us what was wrong! We practiced bandages and first aid for years with “props” and it really paid off. So much so that now conveniently when we are working on folding laundry and she’s over it , she can tell me she needs Motrin for her cramps and a break 😉💙

  • I love watching our children play in their own way!!! They have their little toys and their little babbles , it just makes me happy. Our little B just had to be sedated for an MRI and the IV was really hard, even with the “laughing liquid” he was just so over stimulated…he didn’t like the cover they used for the IV , he didn’t even like sitting on the table … and then when he woke up from sedation it was 2 1/2 hours of him thrashing. As a parent we know these things are important but it’s hard to see them so upset and just confused. I am glad your B had a better experience this time around!

  • U DO have the COOLEST KID EVER!!! I Love Braylee, & u both!!! Onwards & upwards!! Y’all are doing THE BEST job!!! I can completely see she’s FLOURISHING-I can see the difference even since I’ve been subscribed (only about 6 months!!!) Ur AWESOME guys!!!

  • If beautiful B’s skin has a hard time with bandaids/plasters, could u try an adhesive remover wipe or liquid?-I have to have a dressing on me everyday/sometimes multiple times a day-long term-my skin gets really angry, & I used to loose skin when I take the adhesive off-but using the adhesive remover, it completely dissolves the adhesive-no pain/skin loss-just a thought!!!

  • Dat face when she's going on the bus I love it . And poor bugs bunny ! Maybe she's and old french soul cause it sounds she's telling him "t'es bête" ! (Which means "you're silly" or "you're dumb" in french).
    Kisses to your sweet family, you guys are inspirational I wish every parents in your position would be so open minded and "active" about it. Bye !

  • You ever see/hear of those Numbing patches!??!?! We use them for our kids anytime they need Blood work or vaccines!! You put them on an hour or so before the appt and then the doc removes it, wipes it clean, and the skin is numb!

  • Omg! Words! Her words!! She’s doing sooo well with her words! Good job Mom, Dad, and ABA! So happy for her! And you guys! The progress is amazing!!! ❌❤️❌❤️💕💜♥️

  • Love you and your beautiful family. Just some constructive criticism, cheer up a bit and smile while your talking it will make you happier even and attract more people. Congrats on your channel. Sending prayers and love🙏❤✌

  • Oh my goodness I sure have missed yall. I get way to excited when I see a new video lol. Great job on getting your blood work done sweet girl!! We love llamas here too.

  • I am just in love with her vocal Stimming!! (Insert Heart Eye + Crying Emoji's LOL) And all her words!!! I heard her say Autism, Swimming, All done, Red Car, and Doctor!! She's so adorable, we've been binge watching your guys' videos and our little guy reminds us so much of Braylee!! His name is Noah (goes by Bubba) and we are awaiting ASD assessment. He just turned 2 in July, diagnosing is a very long process up here in Canada. Thank you so for all your amazing videos and tell Braylee we love her and think she has a Beeeaaautiful voice!!! <3 <3

  • I actually don't mind needles and sometimes, I joke with the person who's gonna put the needle in my skin, that they could put a thousand needles in me and I'd still be okay. I guess, it's because I have a high pain tolerance. It's been three years since I've officially been diagnosed and almost four years (December of this year) since I've unofficially been diagnosed. But 16-17 years since my mom suspected I had autism. I pick at scabs and dry skin.

  • Braylee is braver than me, that’s so great she did such a good job at the doctors!

    You guys DO have the coolest kid ever! AND you are amazing parents!

  • She is one fascinating child Brayle :)💖 Really like hearing about things from the past it is interesting, the bandage thing is very fascinating whatever works that is good, she is such a cute kid as always, I love learning about how her brain works is fascinating.. ☺❤💙💜💚

  • I will tell you, that even though my son is noe 24 and neurotypical, I still learn as a parent every day. You two are doing a great job.

  • Praying that Braylee doesn't have any thyroid problems and something simple that can be fixed and she feels better. This Thursday is 6 years from have my thyroid removed from cancer. I thought advocating for autism was rough but finding good doctor for thyroid is so hard and being on medication rest my life.

  • The ace bandage could be a sensory pressure thing. I know for me, when I get migraines (often) that if I put pressure to that side of my head with my hand or pressing into a pillow while laying down, it relieves some of the pain. I've also done this with abdominal pain and nausea.

  • OMG…. Can totally relate to Dr nerves. Our daughter hates the Dr, dentist any time anyone needs to examine her person. She is now polite but firm (she is such a sweetheart) which quickly turns into a huge meltdown when we insist….full on fighting to the point where we simply can't hold her still enough to examine. We're on the waiting list for dental surgery under a general. Tooth and hair brushing are our biggest sensory challenges daily. We have tried everything and finally found products that she will tolerate but progress is still painfully slow and for brushing teeth especially no where near adequate. We have to let her find her own way though and wear the consequences because nothing else works

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